Personal Health Data Sharing for Personalized Medicine:
Facts, Opportunities, Security and Ethics
Leaders come together for conversations about types of personal health data, opportunities that arise from integrating these data for health and economic benefits, and issues in secure and ethical storage and sharing of these data.
‘Conversationists’
- Dr Elodie Portales-Casamar, Clinical Informatics Specialist, Child & Family Research Institute
- Dr Nancy Meagher, Executive Director, Population Data BC
- Dr Larry Lynd, Professor, UBC Collaboration for Outcomes Research and Evaluation (CORE)
- Dr Zsuzsanna Hollander, PROOF Centre
- Dr Paul Terry, President & CEO, PHEMI Health Systems Inc.
- Dr Alice Virani, Clinical Ethicist, Children’s and Women’s Hospital of BC
Moderator:
Dr. Jehannine Austin – Associate Professor, UBC Psychiatry/Medical Genetics
Discussion Document: Roadmap for Bringing Personalized Medicine to British Columbians available for download here {PDF} for those interested. Not required reading for Public Talks attendance.
Select Articles and Books Available at UBC Library
Bartlett G, Bartlett G, Rahimzadeh V, Longo C, Orlando L. Personalized medicine: The future of genomic testing in primary care: the changing face of personalized medicine. Future Medicine; 2014;11:477. [Link]
Cullis, Pieter. The Personalized Medicine Revolution: How Diagnosing and Treating Disease Are about to Change Forever. Vancouver: Greystone, 2015. Print. [Available at Biomedical Branch Library – QZ50 .G88 2015]
Mapping BC’s path to personalized medicine. Marketwired. 2015. [Link]
UBC Library Research Guides
